Progeria Research Foundation
A non-profit organisation Progeria Research Foundation solely dedicated to discovering treatments and cure for Progeria launched a campaign titled “Find the Children-10 in Bangladesh with Progeria”.The campaign was launched on Monday with a view to creating awareness among the people including healthcare providers in order to locate and assist children with this rare and fatal rapid aging condition. The campaign sought for public’s help in finding undiagnosed children with Progeria, so they can have access to treatment and healthcare guidelines that can give them longer and more active lives. Progeria, also known as Hutchinson-Gilford Progeria Syndrome (HGPS) is a rare, fatal genetic condition characterized by the appearance of accelerated ageing in children. Children with Progeria die of heart disease at an average age of 14 years- the same heart disease that affects millions of normal aging adults.
